Guide to Help
Patients & Caregivers
Learn how to manage and care for SMA, and monitor progress, growth and development.
Healthcare Professional
Learn how to provide proper treatment to improve the life expectancy of your patients.
Want to Know
Learn more about SMA to help in preventing or get an early diagnosis and intervention.
Living With SMA
A diagnosis of Spinal Muscular Atrophy (SMA) will probably make you feel lost and overwhelmed, not knowing what to do or who to turn to.
While it will be a challenging journey for people with SMA and their families, always remember that you are not alone. Reach out to others and fill this long journey with hope together.
Resources
Finding out that you or your child has SMA will be a new chapter in your family’s life. The resources here can help to be your “compass” in this new journey.
Find out how to manage and care for your child’s SMA, ask the right questions to doctors, reach out to others for support, and more.
Every child deserves a chance to live, laugh, and grow. Yet, for children with Spinal Muscular Atrophy (SMA), their time is a constant race against a disease that steals their ability to move, breathe, and simply be kids.
Why this petition matters
Every child deserves a chance to live, laugh, and grow. Yet, for children with Spinal Muscular Atrophy (SMA), their time is a constant race against a disease that steals their ability to move, breathe, and simply be kids.
Life-saving treatments for SMA exist, but in Malaysia, they come with an impossible price tag, putting these treatments out of reach for many families. This is where YOU can make a difference. By signing this petition, we can urge the Ministry of Health to fund essential SMA treatments and give these brave children the chance they deserve.
Your signature could bring hope to families who dream of seeing their children take their first steps, or simply live without the fear of losing them too soon.
Sign the petition today and be a voice for those who need it most. Together, we can push for a change that matters. Let’s fight for a future where no family has to choose between their child’s life and financial ruin.
Sign the petition here:
Get In Touch
Address
Suite 105, MBE Uptown, No 54 GF Jalan SS21/58, 47400 Petaling Jaya, Selangor, Malaysia
Phone
+6012 522 5232
hello@wecarejourney.org