Bernard 27 years old | SMA type 3
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Bernard 27 years old | SMA type 3
Dear friends and family,
I want to share my journey with you. I work full-time as a Sustainability Analyst and am also the co-founder of Don Management and Dawn Adaptive. When I first started, I could work non-stop from morning till night, driven by passion and determination. However, these days, I find myself needing a break to rest and recharge, often taking a short nap to keep going.
I feel incredibly fortunate to work from home, which allows me the flexibility to take these necessary breaks. However, I long for the day when I can spend more quality time with my family and friends without feeling fatigued. I want my body to be stronger, to be able to enjoy every moment with my loved ones.
I am hoping to get treatment to help manage my SMA and improve my quality of life. This treatment is not just for me but for many others in similar situations. With the right support and funding, more SMA patients can receive the care they need to live fuller, healthier lives.
I humbly request for you to share this post so that more Malaysians are aware of SMA, and we can unite our voices, louder and stronger, to get funding from the government for treatment.
