Hi, I am Emily. I want to share about my journey with Spinal Muscular Atrophy (SMA) Type 3, which I was diagnosed with at the age of 11. As days passed and I gradually lost my abilities one by one, it felt like my life had no meaning. Growing up, schooling seemed more like a responsibility than a path to a bright future. But then, I discovered something that changed my perspective – my computer. Through it, I started researching SMA and found inspiring stories of SMA patients from Western countries. These individuals live independently and have access to treatments that enable them to lead fulfilling lives. This realization made me see the possibilities for myself and others in similar situations. The disparity in access to treatment between different regions is something we need to address. Every person with SMA deserves the opportunity to live independently and have access to the best possible care. In addition to this journey, I found solace and joy in my hobby: clay crafting. Craftwork has been a passion of mine since I was a kid. I even own an online craft page on Instagram called Shalom Craft, where I share my creations. My love for crafting grew during my 14 years at the Eden Handicap Service Center, where I taught and crafted with disabled trainees. One of the highlights of my life was being invited to an international Art & Craft exhibition in Taiwan in 2019, an experience that filled me with pride and joy. Let’s come together to advocate for accessible treatment for SMA patients. By raising awareness and pushing for better healthcare policies, we can make a significant difference. Please share this post and help spread the word. Together, we can create a future where every SMA patient has the support and resources they need to thrive.