SMA Care

Mandy 5 years old | SMA type 3

Mandy 5 years old | SMA type 3

Hi everyone, I am Mandy! I’m 5 years and 9 months old now, and I want to share some exciting news with you all. I’ve been getting treatment for 9 months (since October 2023), and guess what? I’ve noticed some amazing improvements! – I can raise my head for at least 10-12 seconds now, which is way better than just 1 second before. – My energy and strength have improved a lot! I used to do 3 types of exercises (3 sets each) in 30 minutes, but now I can do 4 exercises in less than 30 minutes! – Walking up the stairs used to be super hard, and Mommy had to help me a lot. Now, I can walk up by myself, holding onto the table for support. – I don’t fall down as much while walking, and I don’t feel as tired anymore. – My body balance is better too! I can raise and switch each leg for a few seconds without holding onto anything. – I can stand up from the floor all by myself, using the sofa or a chair for support. These might seem like small changes, but they make a big difference in my life. I’m so grateful for every little improvement in my muscles. My parents and I have to travel far for treatment 6 times a year and it’s expensive for my parents. I feel scared when I go through treatment because it’s an injection through my spine but I know I have to be brave because I need the treatment. My wish is to continue getting treatment, grow stronger, and become independent. I hope that the government can help provide funding to help my parents with the cost of treatment. Thank you for all your love and support! Please share my story.
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