SMA Care

SMACare Family Day 2024

SMACare Family Day 2024

In honour of SMA Awareness Month, we had the privilege of coming together with the SMA community at Sunway Sanctuary. We celebrated not only the advancements in SMA treatment but also the spirit and resilience of SMA families. During the event, our esteemed consultants shared their insights on the following topics: ✳ Dr Norzila Mohamed Zainudin: Breathing Better, Understanding SMA ✳ Dr Tee Bee Chin: Find Your Calm Together – Stress Management for Patients and Caregivers ✳ Dr Tay Chee Geap: SMA Now – Treatment Landscape for SMA ✳ Ms Celeste Lau Wai Hong: SMA and You – A Nutritional Guide to a Stronger You With 60 attendees, including patients with SMA, their families, and caregivers, the event showcased the power of community and shared commitment. Every conversation, presentation, and shared story reinforced that SMA is not just about treatment – it’s about compassion, support, and the holistic well-being of families and caregivers. In addition to health talks, caregivers received demonstrations on handling SMA patients and awareness about aquatic therapy from invited speakers – Fezia Tyebally & Casandra Beh. Games and other activities were also arranged for young children in another hall. This event was truly meaningful, providing insights into available treatment options and highlighting the crucial support networks among families with children or adults affected by SMA.
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